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    Wondershare Filmora Crack is an amazing professional video editor used to easily create anything that you can imagine with easy professional tools and make videos.
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  • Koli1962
    Hi Nurse Linda,
    I had an incomplete, C5-C6 spine injury, in 1983. I did experience temporary paralysis post second surgery. I recovered mostly.  Over the decades I have added various symptoms. Many of these symptoms I thought to be unrelated to my injury. I have been told by several of my doctors that some symptoms are related to my CNS/spine injury. I have tonic pupil, bladder incontinence, congestion, hyperhidrosis, and a dozen other dysfunctions. Over the past several years, I have been evaluated by many specialists respective to any number of symptoms. All diagnostic test were negative. I now experience hypertensive episodes and an onset of several other symptoms. They have put me in overdrive to seek answers. I have been DESPERATELY trying to find a physician that can evaluate me for autonomic dysreflexia. My bevy of doctors feel unqualified to make an AD determination. I was referred to Duke Medical. I was informed the experts are there. Nope, that was unsuccessful too. Now, I have been referred to Vanderbilt's Dysautonomic Clinic. Potential appointment, 1 year! I live in North Carolina and require a diagnosis for proper treatment. Is there a list of providers that evaluate for AD? I really appreciate any assistance. 
    ·
    August 5
    • AskNurseLinda
      AskNurseLinda
      Hi, Koli1962, yes, all of these symptoms you describe are a disruption in the autonomic nervous system except for the pupil, but that is also frequent with SCI as a secondary injury. Keep the appointment for next year for now, but in the meantime, ask at an academic medical center near you in the physical and rehabilitation department for a physiatrist that works with individuals with spinal cord injury. They are out there. You can also ask if one of their graduates is working close to where you are located. You can look around at several academic medical centers but you will eventually find a specialist relatively close to you. Another option is to call the number on the back of your insurance card and ask for a referral to an SCI specialist, or call the rehabilitation hospital where you were treated and ask for a referral. Also, the Paralysis Resource Center at the Reeve Foundation has names of SCI specialists in different areas. They might be able to provide a name of someone in your area.
      At your next regular MD visit, take the Autonomic Dysreflexia wallet card with you. There is information to the physician about treatment that they can use. Here is the link:
      https://www.christopherreeve.org/living-with-paralysis/free-resources-and-downloads/wallet-cards#:~:text=Reeve%20Foundation%20wallet%20cards%20enable,for%20people%20living%20with%20paralysis. You will have to copy and paste the link, I cannot get it to hyperlink. Sorry.
      You deserve treatment. I am sorry you have not found the right healthcare professional but an SCI specialist will be able to help. Nurse Linda
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