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  • bleeve
    bleeve earned the Photogenic badge.
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    August 7
  • bleeve
    bleeve earned the First Anniversary badge.
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    August 7
  • sophia143
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    August 7
  • seofreelancer2020
    Commenting is the best way to get involved. Jump in the fray!
    August 7
  • lupiegrl
    Welcome Aboard!
    August 5
  • AskNurseLinda
    Hi, Koli1962, It can be hard to find someone who is comfortable with treating issues with spinal cord injury. A physical medicine specialist can do it. That is a physiatrist. They are specially educated in just these matters and probably could help with your other concerns as well. You might find one locally in your area or they can be found at any rehabilitation hospital. If you find one that specialized in spinal cord injury, all the better but any physiatrist will know about AD. If you live near an academic medical center with a physical medicine and rehabilitation department, they will have physiatrists on staff as well. Neurologists are familiar with this diagnosis as well but if they do not regularly see patients with SCI, they may be hesitant to make the diagnosis. Your primary healthcare provider would be able to provide the name of a specialist as well so do not hesitate to ask. It is not unusual for a patient to request a specialist for a special need. Nurse Linda
    ·
    August 5
  • Koli1962
    Hi Nurse Linda,
    I had an incomplete, C5-C6 spine injury, in 1983. I did experience temporary paralysis post second surgery. I recovered mostly.  Over the decades I have added various symptoms. Many of these symptoms I thought to be unrelated to my injury. I have been told by several of my doctors that some symptoms are related to my CNS/spine injury. I have tonic pupil, bladder incontinence, congestion, hyperhidrosis, and a dozen other dysfunctions. Over the past several years, I have been evaluated by many specialists respective to any number of symptoms. All diagnostic test were negative. I now experience hypertensive episodes and an onset of several other symptoms. They have put me in overdrive to seek answers. I have been DESPERATELY trying to find a physician that can evaluate me for autonomic dysreflexia. My bevy of doctors feel unqualified to make an AD determination. I was referred to Duke Medical. I was informed the experts are there. Nope, that was unsuccessful too. Now, I have been referred to Vanderbilt's Dysautonomic Clinic. Potential appointment, 1 year! I live in North Carolina and require a diagnosis for proper treatment. Is there a list of providers that evaluate for AD? I really appreciate any assistance. 
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    August 5
  • Rollingalong
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    August 3
  • stephanie426
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    August 3
  • UNBROKEN
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    August 1
  • cfaschini
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    July 30
  • Kathleen
    Kathleen earned the First Anniversary badge.
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    July 29
  • cntr4chronicillness
    I shared this post back in March, but wanted to re-share in case anyone missed it and might be interested in these support groups. 

    Hello! I am writing on behalf of our nonprofit, the Center for Chronic Illness, a nonprofit organization that offers free, professionally-facilitated support groups for those impacted by ongoing health challenges. Thanks to a generous grant from the Reeve Foundation, in February 2020, we piloted two new support groups, one for individuals living with paralysis and one for their loved ones and caregivers. These programs meet monthly and offer a safe place to talk about the challenges of living with paralysis or caring for someone living with paralysis. You can learn more about our web-based support groups and sign up here: https://www.supportgroupscentral.com/CCI. To sign up, follow these steps:
    1. Visit https://www.supportgroupscentral.com/cci
    2. Click on the “Not Yet a Member” link or “Member Login”
    3. Click on the “Organizations” tab and scroll down to confirm that Center for Chronic Illness is a “Favorite”
    4. Click on the “My Favorites” tab where you will see a list of upcoming meetings organized by your favorite topics and organizations.
    5. Select the meeting you want to join and click on the “Register” button.
    6. You are now registered and can view your upcoming meeting from the “My Meetings” tab or the Dashboard on the left of your browser window. You will also be reminded of your meeting by email and an in-system notification when you are logged in.
    I've attached the fliers below for these two support groups. Please contact us at [email protected] with any questions. Please note our organization is based in Washington-state, but anyone living anywhere can attend our support groups. 

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    August 4
  • mmoncrie9404
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    July 28
  • reganshaw
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    July 26
  • dee1843
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    July 26
  • cocococoral
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    July 23
  • SamRees
    One of the best ways to increase the enjoyment of your home and land is to build a small barn or storage building to store all your gardening and hobby equipment. You can construct a small building to fit your lot size and storage needs for less cost than you think. If you want to get more detail about the design and build, contact "starling-construction.com" experts.
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    July 23
  • SamRees
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    July 22
  • JayPorter
    Sind Sie ein Rentner und suchen nach Möglichkeiten, um Urlaubskosten zu sparen? Dann müssen Sie auf der Website Urlaub buchen günstig nachschauen. Dies ist das beste deutsche Reiseportal, das guten Service bietet und Ihre Reisen angenehm macht. Wählen Sie jetzt Ihre Urlaubsspakete über die Website.
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    July 23
  • vpitaluga1
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    July 23
  • MikeSmithSudbury
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    July 22
  • MikeSmithSudbury
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    July 21
  • MikeSmithSudbury
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    July 21
  • ShortieO
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    July 21
  • Patricia_PRC
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    July 19
  • pearlineruecker
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    July 18
  • ishalove108
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    July 17
  • ishalove108
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    July 16
  • ravitejafe

    As an Enterprise Support Engineer (ESE), you work directly with our most significant and most strategic business customers to identify, identify, and resolve your technical issues.

    https://techhmode.blogspot.com/2020/02/what-is-enterprise-support-engineer-5.html
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    July 17