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  • lupiegrl
    Welcome Aboard!
    August 5
  • AskNurseLinda
    Hi, Koli1962, It can be hard to find someone who is comfortable with treating issues with spinal cord injury. A physical medicine specialist can do it. That is a physiatrist. They are specially educated in just these matters and probably could help with your other concerns as well. You might find one locally in your area or they can be found at any rehabilitation hospital. If you find one that specialized in spinal cord injury, all the better but any physiatrist will know about AD. If you live near an academic medical center with a physical medicine and rehabilitation department, they will have physiatrists on staff as well. Neurologists are familiar with this diagnosis as well but if they do not regularly see patients with SCI, they may be hesitant to make the diagnosis. Your primary healthcare provider would be able to provide the name of a specialist as well so do not hesitate to ask. It is not unusual for a patient to request a specialist for a special need. Nurse Linda
    ·
    August 5
  • Koli1962
    Hi Nurse Linda,
    I had an incomplete, C5-C6 spine injury, in 1983. I did experience temporary paralysis post second surgery. I recovered mostly.  Over the decades I have added various symptoms. Many of these symptoms I thought to be unrelated to my injury. I have been told by several of my doctors that some symptoms are related to my CNS/spine injury. I have tonic pupil, bladder incontinence, congestion, hyperhidrosis, and a dozen other dysfunctions. Over the past several years, I have been evaluated by many specialists respective to any number of symptoms. All diagnostic test were negative. I now experience hypertensive episodes and an onset of several other symptoms. They have put me in overdrive to seek answers. I have been DESPERATELY trying to find a physician that can evaluate me for autonomic dysreflexia. My bevy of doctors feel unqualified to make an AD determination. I was referred to Duke Medical. I was informed the experts are there. Nope, that was unsuccessful too. Now, I have been referred to Vanderbilt's Dysautonomic Clinic. Potential appointment, 1 year! I live in North Carolina and require a diagnosis for proper treatment. Is there a list of providers that evaluate for AD? I really appreciate any assistance. 
    ·
    August 5
  • Rollingalong
    Welcome Aboard!
    August 3
  • stephanie426
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    Answering questions is a great way to show your support for a community!
    August 3
  • UNBROKEN
    UNBROKEN and HobalG joined.
    Welcome Aboard!
    August 1
  • cfaschini
    Welcome Aboard!
    July 30
  • Kathleen
    Kathleen earned the First Anniversary badge.
    Thanks for sticking with us for a full year.
    July 29