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Comunidad de información y apoyo para las personas que viven con parálisis y sus cuidadores en español.
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What is the one thing you have struggled with most since your injury?
garrisonredd
Moderator Posts: 161 Moderator
I would like for individuals to share what they have struggled with post injury
Comments
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The biggest thing for me is having to call a repair man for things that need fixing around the house. I have always been a "Mr. Fix-it" and to have to pay someone to do something that I used to easily be able to do is very frustrating. I have had limited success in directing the repair of a few things through my wife and son but, they are not as mechanically inclined as I am and I can easily go over their head with my explanation.
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@jaarch I can see how that can be hard. My struggle is kind of similar to that. I have played almost every sport that is popular in the US. Football, basketball, soccer the list goes on. So not being able to have a special kind of control over the task my body performs can be tough. I do my best to focus on what I can do instead of what I can't. I'm thinking there is still a lot that would take a lifetime so I shouldn't be bored anytime soon. 😁
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The hardest thing for me that I struggle with after my injury is the loss of independence I once had. I know that is very broad, but I was such an independent person before my accident. It is hard to not be able to do a lot of the things I took for granted before my SCI. Like @Sterlion said I do my best to focus on what I can do and not what was taken from me. I missing be able to jump up out of bed take a quick shower, get myself dressed, make breakfast and head off to school for the day all in the matter of 30 mins. I could go on and on about the things I miss, but don't think about it a lot anymore.Accept what is, let go of what was, and have faith in what will be. -SONIA RICOTTI
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My biggest struggle is similar to that of @Zcollie .
The issue of independence and just not being able to do what I really want to do on my own… Needing someone else to initiate the goal that I wish to achieve was and is still a bit frustrating at times but just like every other issue in the life of a SCI, I don't put energy or focus on it. I simply figure it out and complete it however necessary! -
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Thank you for openly sharing this you guys. It's so important to keep these perspectives especially as partners of men with SCI.
Your WAGS of SCI
(Elena and Brooke) -
My loss of independence was devastating. I have to ask people to do almost everything for me now. I am a quadriplegic and have been in a nursing home for nine years. Quite a few of the people who reside at the nursing home have Alzheimer's. It's a terrible disease. For the most part the only people that I have to talk to are the staff. I have an interest in art, history, nature and technology. Fortunately I can use Dragon software to get around on the computer. Otherwise I would go mad staring at the TV all day. Google and YouTube are my go to sites to explore. I love YouTube! I don't dwell on the past it serves no purpose. People who complain day in and day out are toxic. I try to be positive always moving forward.
