Bowel AD landed us in the ER...

WAGSofSCIWAGSofSCI Posts: 232Moderator Moderator
100 Likes 100 Comments 25 Awesomes First Answer
AD due to bowel issues...

My partner and I recently spent a weekend at his parents. It was a very relaxing weekend until our bowel program, and he had a VERY hard time going to the bathroom. I tried everything from digital stimulation, olive oil, suppositories, warm lemon water, etc etc....the result: he suddenly had goosebumps, a massive and quick onset HEADACHE every time I did stimulation. We have never experienced anything like this in our lives.... 

We returned home and tried to regain some normalcy. The next few days, no sleep, unpredictable and quick onset migraines occurred repeatedly. After day 3, we HAD to go to the ER... the diagnosis...."mild bladder infection they assumed"...but, once we had the results came out to be nothing. 

After talking to peers online and checking with a nurse in the rehabilitation clinic that Dan was hospitilized in for months, it was determined to be an "Autonomic Dysreflexia Hangover". Meaning excruciating headaches and no sleep can last for up to 2 weeks. 

IF anything we hope this information can be valuable to someone else. We are only 3 years post injury and this really scared and shook us to the core.

Your WAGS of SCI
(Elena and Brooke)


  • prc_donnalprc_donnal Posts: 9Member
    Name Dropper First Comment
    Hi, Elena!
    Thank you for your post.
    I am an Information Specialist at the Paralysis Resourcee Center.
    We have information available on AD, including a wallet card, as well as information on bowel management. 
    I would be happy to send these toyou. Please contact me at [email protected]; phone is (800) 53907309 x5911.

    Donna Lowich
    Senior Information Specialist
    Christopher & Dana Reeve Foundation

    Have a question about paralysis and need personalized assistance? Contact our Information Specialists:
  • ambercollieambercollie Posts: 43Moderator Moderator
    10 Comments 5 Likes 5 Awesomes Name Dropper
    Good info!
    Sorry you guys had to go through that though...will be very helpful if others experience similar things. Thanks again for sharing!
  • WAGSofSCIWAGSofSCI Posts: 232Moderator Moderator
    100 Likes 100 Comments 25 Awesomes First Answer

    Of course, it's all part of the process and we are all in this together. :)

    Your WAGS of SCI
    (Elena and Brooke)
Sign In or Register to comment.