We would love to get to know you. Please tell us who you are. My name is Tricia. My husband was injured in a bike accident in 2015. His injury is at T4. I would love to connect with this community!
At 19, you don’t really think something like waking up and finding out you will be paralyzed for the rest of your life could happen to you, until it does and when it does, it seems to teach you a few things about life. It seems to give you a different perspective, a better perspective. At least it did for me. You learn who you are, what you’re made of. YOU LEARN YOUR PURPOSE. It’s been 4 years now since the accident and time seems to pass by faster with each year that goes by. January 31st is just another day for me now and Lilly is alive and well too. She is my best friend. The bond we share could never be broken. That boyfriend I had at the time, he’s now my husband. The most amazing husband I could ever ask for. Those family members, we’re all closer than ever before. I couldn’t be more thankful. And me- I’m a speaker and a social media influencer. I live life every single day from my wheelchair and with only the use of my upper body. I drive. I visit Shepherd often and give back to other patients who are in the same situation that I was in and I teach OT and PT students how to teach a future paralyzed patient of theirs to live life and get dressed from a wheelchair. I do everything that any able-bodied person would do on a daily basis, just in a different way. I’m still in physical therapy to this day, only 1 day a week, for my overall health and range of motion. I proved my surgeons wrong and I walked down the aisle at my wedding to my husband in my leg braces, all with the help of my physical therapist training me over the last 3 years, which turned out to be another difficult task for me to learn to do, but I think every girl dreams of walking down the aisle to her husband from the time she’s a child. It was something I had pictured in my head from the time I was a little girl and I didn’t want that picture to be played out differently just because of my accident. So I chased my dream. I conquered my goal and I hope by conquering my goal, I’m able to prove to every girl out there in my same situation or with any disability that they too, can still have that special moment on their big day if they put in the work and never give up on their dreams. I live trying to inspire others with my story, because I feel that’s my purpose. I feel God gave me my story for a reason and I should use it for the good, because there’s just something about growing through what you go through.
4 years ago, I never would’ve imagined I would be where I am today. The mountains, the valleys, the trials, the setbacks, the comebacks- there’s a certain beauty in all of them. They made me who I am. They tend to continually dig up the soil in me and let me see what I’m made of and there’s just something about that part where you find out who you are, when you find out why God gave you this specific battle. I think that’s the whole purpose of the journey- to find out who you are and what you’re made of. To find your why. To share God’s love. To shine light in darkness. To lean on him. To share how he’s made beauty out of ashes. I’ve learned he won’t protect you from every trial in life, but he will bless you with the strength, wisdom and grace to get through it. I’ve learned I wouldn’t still be here if there wasn’t more in store for me. I wouldn’t still be here if the journey was over. I’ve learned to keep my eyes fixed on the one who kept me breathing and keep my heart tied to the one who continually strengthens me to keep going. It doesn’t matter what you’ve done or what you’ve lost, in him you’ll find a reason to keep going that you won’t find anywhere else. Lilly and I celebrate our survival and the life that we still get to live day in and day out. I’m grateful for where we’re at and excited about where we’re going. My wish for everyone I come in contact with and everyone that comes across my story is that you never stop living your life to the fullest no matter what you may be going through. Always follow your heart and dreams and never give up!
Hi! I'm the mom of a 23 year old son who was injured 9/10/17, so we are still very new to the SCI life and have soooo many questions about it all. He is a C7, T5/6 injury and is medically a quad. He has use of his arms, but limited use of his left hand (about 20%) and about 80% use of his right hand. He was extremely active pre-injury, and had gotten into weight lifting and hiking. He now does nothing but read and watch podcasts. I can't get him out of the house except for 3 days a week at the gym. He has basically quit living outside of the room we made for him by converting our carport. I am desperate for him to connect with others, and yet I know he has to want it himself. He wants to be independent, but doesn't really work at it (like I think he should). I didn't realize that this website could be a source of help for me so I'm excited about exploring the website and seeing all that it has to offer. The wonderful ladies of WAGS of SCI have been helpful, even though I'm a mom and not a wife or girlfriend
Hi my name is Ray Sellers I was shot 3 times February 9th 2016 From an act of violence in the streets of Oakland Ca. leaving me a c5 quadriplegic. Adapting was tough very tough. I feel in to a deep depression not wanting to do nothing not get out the bed not do therapy nothing. I couldn’t see no further then my condition. I was angry pushing away all the love and little help I did have around me away.
Working out has been a great avenue to help me with depression and stay motivated. Rugby has been another great avenue meeting others that’s fighting and over coming the same struggle made me a believer that life after SCI was possible and that I could be independent.
My goals are to help quads coming after me see that it is possible to live after sci and live a normal life.
Hi Cruck! Thank you :-). I would say it's pretty insane. It also is reversible! Look at it upside down. I was injured May 29th 2009 in Oklahoma City. Crucker said:
Jewell, insane image. When did you have your injury?
My name is Rob, and on July 6th 2016 I got into a car with a drunk driver. He tried to take a off ramp at over a 100 mph. We hit a wall between 78 to 88 mph. I was not wearing my seat belt and was DOA. I sevard my spinal cord at the T10, broke my neck, broke all my ribs but 1, right side was so crushed they needed to be plated as they kept collapsing my lung. My right lung was all ready collapsed from the wreck so I had chest tubs in both sides. I had several internal things wrong as well, facial fractures, broken nose, pulled my right arm out of socket and messed my elbow up so bad that my arm don't go straight. I only had a 5% chance of living. They was trying to keep me alive that some things was less important. But things got worse I was in a induced coma for the first two weeks and didn't breath on my own for over 3 weeks. But yea it got worse. I also had a trake. Something was going on with my throat they could not put a feeding tube down my throat it just kept going into my lungs. so I had to get a peg tube put in. I couldn't handle my of the feeds as they bloated me very bad so I went from 180 to 105 maybe 110. Then I moved my arms and fingers that made everyone happy. I ended up paralyzed from the chest down. Then I battled this troat issue as I had not ate food for over a year. They would stretch it out and it would close so I had to be on a soft diet plus the peg tube. After I think 30 or so going under 2 stents and some pig membrane it's better than it was. And out of no where I lost my voice. Im a sound engineer and DJ so I thought yelling is why but it wouldn't come back. Drs say it was some type of virus. Got my gal bladder out as it was impacted into my liver shortly after getting it out I got very sick ended up going back to the hospital as I was hitting a fever of 104.1 it was over 104 here I had a tear and it was all draining into my stomach. Now I went to Magee for rehab. I was stoked to be there as it's one of the best. I forgot to add this. But I took my meds via peg tube. But was having my first sleep over with some family and I had to take 1 little pill she smashed up put in a bite of apple sauce but I choked and all a sudden I woke up with another breathing tube in. I got it out but everyday they said I go back to rehab but next day I sat there. This went on for weeks before some people took charge and I got me moved to a rehab I wish I could of went to Magee but I came home and all my family would come out to see me more it was a great part of my rehabilitation. I was in the hospital more in the first year after being out because of very bad colds plus the bladder issue. I just don't know where I be with out my GF, and my two step girlies Sophia and Brooke Aundrea Andy. But it's hard it's. Only been two years but it feels like yesterday. I fight bad depression and night mares. The guy who was driving took his life the day before a Curt hearing. I just want out of this dark place. I feel like I have nothing to offer anyone. Words hurt. I close my self off. I talk to my self in my head. After I lost my voice I don't talk a lot as I have to use my lungs after five minutes I'm dead tired. I'm sorry for all the spelling mistakes hard to write through tears.
I am Gary, an engineering student working at the Irani Center for the Creation of Economic Wealth (I-CCEW) at the University of Oklahoma. This semester I am on a team working with Spinal Singularity, a health technology startup company focused on building devices for people with paralysis. We were tasked with building a device that will help people with paraplegia to stand.
We are currently in the prototyping phase of the project and will be needing your valuable insight over what this device should do. Your responses will be of great help to us and we will really appreciate it. If you are willing to help us make this project successful, please to reach out to any of these contacts below and we can schedule a 30-minute interview.
Gary Sefah: [email protected] / 5053101855
Thank you for your time.
This project was supported, in part, by grant number 90PRRC0002, from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official Administration for Community Living policy.
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