Reeve en Español
Comunidad de información y apoyo para las personas que viven con parálisis y sus cuidadores en español.
Comunidad de información y apoyo para las personas que viven con parálisis y sus cuidadores en español.
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Comments
I'm had some amazing results with acupuncture. I also take a medication for my bladder it begins with an m but I don't have the name in front of me it in front of me. .. it begins with an m and it's helped me quite a bit
I too have seating problems but it is due to my scoliosis. It keeps tilting me to my left side. My PT put a wedge on the left side and that has helped. My spasms don't hurt me when they occur but I have 24/7 nerve pain which is really intense. As much as possible have your daughter check her position regularly especially after spasms. One good trick is to have her look at her knees. If she is seated correctly in her chair, her knees should be even with each other. If not, then she may be leaning one way or another. I wish you both nothing but the best. I am glad you are both here..
Joe
that being said watching how you stand and being very body position awareness can help.some from leaning to one side too much to bending your head down for using a phone or iPad.
I'm online in this community every Wednesday from 8-9 PM ET to answer your SCI and paralysis related questions.
Leave a comment any time below. Let's get the discussion going!
Nurse Linda
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I'm online in this community every Wednesday from 8-9 PM ET to answer your SCI and paralysis related questions.
Leave a comment any time below. Let's get the discussion going!
Nurse Linda
Register for my next webchat! Sign up here!
https://docs.google.com/document/d/1rQo7qOO1kbRdLSl6BmWyfp9TTapeFHcPYZ6yyfKb4vw/edit?ts=5cabdc17
https://docs.google.com/document/d/1rQo7qOO1kbRdLSl6BmWyfp9TTapeFHcPYZ6yyfKb4vw/edit?ts=5cabdc17
Yes the tetraski is brand new. There are only five in use right now. What's amazing is it can be controlled with a simple hand joystick like a power chair or even a sip and blow straw. It has such a wide span of usage from high-level injuries to those with chronic illnesses weakness and fatigue.
The fact that I skated the entire day and I'm still awake and not unconscious is a huge!!! Moreover it went faster than the by ski with the fixed outriggers and so much less pain especially as I can't turn my neck very much look up the mountain just slow down and turn.
Advanced very quickly in just two days unfortunately another person hasn't reserved for Thursday and Friday morning so I will only getgit et Thurs and Friday afternoon. I'm going to take some GoPro videos hopefully from different angles especially as I'm moving up on the more challenging mountains now that I'm getting the hang of controlling the speed. They're talking about future generations having more independent features.
I'm speaking with the developers today. I too well at once I was able to do monoskis but as I ost my strength my ability to even do the buy ski with a fixed outriggers was challenging. they really do need to get some socks in it though and that's something they're talking about because right now I'm hurting from all of the jostling around especially since I was going up on the higher challenges. Unfortunately tomorrow I have to use the fixed outriggers by ski in the morning
Django,
I am so glad to meet you and that you are here. I am going to be 68 on May1. I am a T2/3 meaning I have a little more sensation on my left side than my right. I was injured 8.5 years ago and still learning and yearning. Where do you live? That is amazing that you are living independently at 2 years post. I know I couldn't have done that. You will find a lot of love and support on this site. No one knows what it's like to be in a wheelchair like someone else in a wheelchair. The first time I was able to be around other people in chairs, the more comfortable I felt. I wish you nothing but the best. If you ever want to talk or vent or anything, I am here...
Joe
I never got the opportunity to ski when I was able bodied but reading all of these messages about the adaptive skiing has made me curious and wanting to try...
Joe
Thanks a lot. I am definitely going to look into it. I have always enjoyed many different kinds of sports. I even went surfing after being paralyzed and it was a blast even though initially I was scared out of my mind. Thanks for the encouragement.
I'm online in this community every Wednesday from 8-9 PM ET to answer your SCI and paralysis related questions.
Leave a comment any time below. Let's get the discussion going!
Nurse Linda
Register for my next webchat! Sign up here!
I'm online in this community every Wednesday from 8-9 PM ET to answer your SCI and paralysis related questions.
Leave a comment any time below. Let's get the discussion going!
Nurse Linda
Register for my next webchat! Sign up here!
That was very cool. I am a T2 incomplete and have full use of my hands and arms. What devices are around for para's?
I'm online in this community every Wednesday from 8-9 PM ET to answer your SCI and paralysis related questions.
Leave a comment any time below. Let's get the discussion going!
Nurse Linda
Register for my next webchat! Sign up here!
I have some gopro videos already and the second staff person recorded on my phone. I will put them and the next two afternoons together.
My biggest suggestion for the next version is to have a U or V shape handle like they have for car hand controls. After some time I found myself using my palm. The other thing is shocks. I have a great deal of cranial instability and definitely was hurting today.... but totally worth it! I was speeding down at the end. The instructors commented that this was so much less work because he only had to intervene a few times other than that i was independent. I did this with my oxygen concentrator, full leg braces, back brace and neck brace! So Awesome.
I noticed you were mentioning adaptive wheelchairs. Right now my son and members of my scout troop we are trying to raise funds to purchase a all terrain off roading wheelchair as we have no means to accommodate scouts and scout leaders with mobility impairments. I know I can not get around on my own with my freewheel and service dog and need to have additional people assist me.
We are trying to raise funds so that we can be able to reach out and recruit youth from the Far West Wheel Athletic Association, though i do not want to do so until we have a means of better access. I am currently creating MyIntent bracelets and selling them as part of a fundraiser for our efforts. (and medical causes.) I will also be at the Bay Area MakerFaire.
I'm rather passionate about this because it not only affects paras, quads, inbetweeners (like me- made up word) but also people with invisible limitations. For example, I had several cub scouts not continue on to scouting bsa because they knew they couldn't hike or go to the camps.
Any fundraising ideas or contacts people have would be greatly appreciated!
My name is Dan, I am a C5 Quad and my injury occured just over 3 years ago while I was vacationing with my girlfriend (of 3 years at the time) Elena. Actually, Elena's first blog post for The Christopher Reeve Foundation went live today on WAGS of SCI. Check out story.