Medical Cannabis and CBD

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  • ZcollieZcollie Posts: 112Moderator Moderator
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    @StaceyShumaker Happy to hear that Cannabis helps with your spasms. For me that is the primary reason I use it. I have very crazy body spasms and my body gets very stiff throughout the day. I have a vape pen that is half THC and half CBD. Works really well for me to relax my body without making my head cloudy, which straight THC does to me. I like that I can vape and feel it and still get stuff done.
    Accept what is, let go of what was, and have faith in what will be. -SONIA RICOTTI
  • jaarchjaarch Posts: 44Moderator Moderator
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    @housecatfrosty I don't use THC or CBD but your description of your SCI progressing reminded me of my situation. I developed a spinal syrinx which is a pocket of Cerebrospinal fluid (CSF) that formed around the outer sheath of my spinal cord. It's essentially a cyst. Anyway, mine was really big and was putting pressure on my cord in my neck and causing spasms as well as loss of strength and sensation in my arms. They can only find it with an MRI and I had to have two surgeries to drain it. They installed a shunt which drained only the bottom half(below my level of injury) and then another one, four years later, to drain the top half. Every situation is different so your mileage may vary. Anyway, it's something to ask your doctor about. 
  • Mnichols23Mnichols23 Posts: 33Moderator Moderator
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    I use 100 mg baclofen every day. I also have severe nerve pain. I don’t like taking pain killers and opioids due to some side effects. Smoking medicinal marijuana has been the most helpful thing for my pain and spasms.  I enjoy smoking indica at night time to help me sleep because I have trouble staying asleep at night. 
  • iamdadmaniamdadman Posts: 137Moderator Moderator
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    @Zcollie
    Being of that generation that did a lot of experimenting with drugs, I started smoking weed at around 16 years of age.  I stopped after about 20 years because I no longer enjoyed the high it gave me.  After being paralyzed, I was hammered by spasms.  Additionally, I have 24/7 nerve pain that never subsides.  I have tried various kinds of CBD and marijuana.  I only smoke now at night before bedtime so I can get a restful night's sleep.  It is not a problem for me because I live in Washington state and it's legal here for both medicinal and recreational purposes.
  • BrookeUBrookeU Posts: 130Moderator Moderator
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    I don't know how I missed this thread before now, but I wish everyone could see this! There are so many things that CBD/cannabis can help with, and I doubt most people are at all aware of how it helps people with SCI. I had never heard of a Baclofen pump until now either, so thanks for educating me :)
  • Mnichols23Mnichols23 Posts: 33Moderator Moderator
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    I’ve only used marijuana by smoking. What are some of your alternatives for cbd oil?
  • iamdadmaniamdadman Posts: 137Moderator Moderator
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    @Mnichols23
    In Washington state, there are many alternatives:  vaping marijuana, vaping marijuana oil, edibles, drinks and tablets.
  • ZcollieZcollie Posts: 112Moderator Moderator
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    @Mnichols23 What state are you in? it depends, but there are many alternatives for CBD oil. Capsules, vaping, tincture, edibles, bath bombs, lotions, etc... 
    Accept what is, let go of what was, and have faith in what will be. -SONIA RICOTTI
  • Mnichols23Mnichols23 Posts: 33Moderator Moderator
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    @Zcollie nj! I have vaped the oil before. I would love to try edibles but don’t know how to make them 
  • ZcollieZcollie Posts: 112Moderator Moderator
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    @Mnichols23 Well if you are referring to CBD it is legal in all 50 states and if you cannot find access to it anywhere near you live you can order it off of the internet in any of the many forms it comes in. THC would be different depending if it is legal in your state or not. 
    Accept what is, let go of what was, and have faith in what will be. -SONIA RICOTTI
  • iamdadmaniamdadman Posts: 137Moderator Moderator
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    @Zcollie
    There are tons of recipes online for making different edibles.  Our old friend, Google, has all the answers...:-)
  • DerrickDerrick Posts: 2Member
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    Is there a website or can people post on this discussion board on what strains have worked for sleeping and pain and spams? There is so many different strains. I know that medications can effect people differently but having a list that helps SCI conditions would great. 
  • ZcollieZcollie Posts: 112Moderator Moderator
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    @Derrick I am not sure of a website to discuss this on, but we can talk about it on here or message me privately if you want. In general, Indica strains are best used for pain and spasms. Indica helps relax the body. Sativa strains are more for the head. People usually use Sativa during the day and Indica at night. 
    Accept what is, let go of what was, and have faith in what will be. -SONIA RICOTTI
  • iamdadmaniamdadman Posts: 137Moderator Moderator
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    @Derrick
    there is one website I am familiar with called Leafly.  The url is https://www.leafly.com/.  They are very informative about the effects of the different kinds of strains and even where to purchase and in my state tell you who is having sales...  You may want to check them out.
  • arethamorcearethamorce Posts: 4Member
    First Comment
     Alternative medicine is more accepted nowadays due to its promising results unlike pharmaceutical medicine, alternative medicine doesn’t give a negative effect such as kidney and liver problems when it comes to long term use. As for my alternative medicine usage, I use medical marijuana. The different strain has a variety of uses and effects depending on your needs. Like this marijuana strain https://www.gyo.green/sensi-seeds-mr-nice-g13-x-hashplant-sen-mgh-r.html. This strain has a very potent effect on chronic pains like back pain and joint pain and a lot more.  The benefits of marijuana, specifically the CBD cannabinoid, are undeniable. Let's take a look at all of the ways CBD is helping patients every day.

  • Mnichols23Mnichols23 Posts: 33Moderator Moderator
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    @iamdadman I use leafly.com  also. It’s a very informative site
  • PRCkathyPRCkathy Posts: 9Moderator, Information Specialist Information Specialist
    First Comment

    In case you missed a part -

    The Christopher & Dana Reeve Foundation Pain Medication Education  3 Part Series is available at: 
    https://www.youtube.com/watch?v=dLbl0VwRn5k&feature=youtu.be

    Hosted by Jay Gupta, the Director of Pharmacy and Integrative Health at Harbor Homes in Nashua, NH, as well as an MTM consultant and Yoga Therapist.  


  • PRCkathyPRCkathy Posts: 9Moderator, Information Specialist Information Specialist
    First Comment

    In case you missed a part -

    The Christopher & Dana Reeve Foundation Pain Medication Education  3 Part Series is available at: 
    https://www.youtube.com/watch?v=dLbl0VwRn5k&feature=youtu.be

    Hosted by Jay Gupta, the Director of Pharmacy and Integrative Health at Harbor Homes in Nashua, NH, as well as an MTM consultant and Yoga Therapist.  


  • riopetersonriopeterson Posts: 1Member
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    @lauragracebeck are you using a CBN extract or a product high in CBN?
  • BrookeUBrookeU Posts: 130Moderator Moderator
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    Just wanted to hop back in here and say that in my disability studies class yesterday, a group gave a presentation on the benefits of CBD oil for various conditions. Fittingly, this topic was a centerpiece in the Georgia legislature yesterday. Possessing CBD oil in Georgia for certain medical conditions has been legal, but the buying and selling of it has not been...quite a loophole that negatively affects the people seeking it. Now that's going to change! Here's an article on that for those of you who are interested: https://www.cnn.com/2019/04/03/politics/georgia-medical-marijuana-bill/index.html
  • Monica.TMonica.T Posts: 96Member ✭✭
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    How about Hemp CBD liquid? 1ml serving has 16.6mg industrial hemp CBD. {it contains no THC} Has anyone tried it to help with sleep? Considering it for Charlie.
  • ZcollieZcollie Posts: 112Moderator Moderator
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    @Monica.T I have not tired that one specifically. There is a website https://www.lazarusnaturals.com that sells full-spectrum CBD as well as CBD isolate. Isolate means it is pure CBD oil (zero THC) they give a lifetime 60% discount to anyone that has a long term disability, low income, or a VA. Just wanted to share this with you. I really like this company and their products. 
    Accept what is, let go of what was, and have faith in what will be. -SONIA RICOTTI
  • WAGSofSCIWAGSofSCI Posts: 134Moderator Moderator
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    Hey All - Brooke here

    My husband uses high THC strain cannabis all the time. This is the only thing that he says helps his spasms. (TOO BAD insurance doesn't pay for this medicine.. they should! But thats another topic...)

    He says that cannabis helps him relax and also contributes to a healthy more balanced mindset. He uses Indica dominant hybrid strains for daytime (with higher THC) as well as full blown - as high THC as he can get- strains for nighttime. He uses a PAX 3 dual herb and wax/oil vaporizer for all of this - his lung function is not the best as most quads do not have full lung power, so he says smoking it hurts and burns his lungs. He also feels it is important to maintain what little lung power he does have left as a C4 quad, so vaporizing is the cleanest thing he can do. He bought the PAX 3-  4 years ago and although the initial investment was expensive, it has paid for itself in quality in the long run. It allows the smoker to use both crushed up herb, as well as waxes, oils and shatters in one device so he can try varieties of cannabis at any time. Also, it has not once malfunctioned or broken down. It is synched with an app so he can digitally adjust the temperature from his IPAD or phone depending on what strain and what temperature he wants to smoke at.

     I also spend time each month making weed cookies and freezing them for use throughout the month. We have tried all strains that are available here in Vancouver, but so far, a strong Kush (like bubba Kush or purple Kush) work the best for body effects and edibles for him. He says the strong body high is what works well to relax him. I make a weed infused butter each month and substitute the cookie recipe's butter one to one for the cannabis butter. This relaxes his spasms for up to 8 hours and helps him to sleep. We experiment a lot and find what works best for him by trial and error. Everyone's body is so different especially after SCI, but he has not found that CBD strains work well for spasms - but they do help with pain management and for other health benefits. If anyone has any questions about weed or cookies - its legal here so we have great access to information. - Brooke (WAGS of SCI)
    Your WAGS of SCI
    (Elena and Brooke)
  • iamdadmaniamdadman Posts: 137Moderator Moderator
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    @WAGSofSCI
    Great information Brooke.  I live in Washington state where both medicinal and recreational marijuana is legal.  I smoke it at night most of the times because I find I don't like the feeling that the pot gives me.  We have tried all of the different strains and it is true, for me, with all of them.  I also use a vape.  My wife has made cannabis butter and cookies as well and they don't create the same effect for me that smoking does.  It lasts longer and I don't get anxious or paranoid like I tend to do with vaping...

    Joe
  • Melody_LacyMelody_Lacy Posts: 8Member
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    Crucker said:
    Zcollie, vaping has never worked for me and I worry about lung damage from smoking. Any suggestions?
    Dear @Crucker,
    If you want to try THC and only if you live where it is legally safer to try it (which I do not), here is a tried and true recipe:
    Read the entire recipe before you begin.  Measure all ingredients before you begin. 
    In a small skillet over medium heat melt half a cup of coconut oil. Add three tablespoons of finely chopped or sifted dry strong THC containing herbal flowers without stems or seeds.  Cook while stirring until just golden and only beginning to brown.  Quickly add one cup of cold maple syrup and take the skillet off the heat.  Add a cup and a half of cooked sweet potatoes and half a teaspoon of cinnamon and a teaspoon of grated fresh ginger. Stir well. Cover until completely cool.  On a piece of plastic wrap, plop the mixture and squish it into a log, using the plastic wrap to help shape it.  Roll it up so it looks like a sausage.  Freeze.  Unwrap and use a very warm knife to slice off a small sample.  Key word "small".  You can enjoy it cold or put it on a biscuit and warm it up.  Try it when safe and in privacy.  Negative side effects can include paranoia, but that usually means too many people are around.  You may then, after experimentation, try larger slices but do not gobble it up even though it is delicious.  It keeps well in the freezer for up to 9 weeks.  
  • iamdadmaniamdadman Posts: 137Moderator Moderator
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    @Crucker
    Hey Cruck,
    If you are not into smoking to gain the positive medical effects, there are many commercial edibles and drinks that are available.  I am not sure where you live so I don't know if that is something available to you.  The ingested via edibles or liquids last longer and I have found provide greater relief for my spasms.
  • CruckerCrucker Posts: 50Moderator Moderator
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    @ melody_lacy
    @ iamdadman

    Thank you both for your suggestions. First of all, I live in California so no difficulty or legal hassle with buying anything. Melody, your sweet potato concoction sounds delicious. My problem with ingestibles is probably y'all's reason for liking them -- their long half-life. If I smoke the right strain, the high is gone after 2-3 hours, tops, and I can return to my functioning straight mind. An ingestible is kind of like LSD or peyote. You consume it, nothing happens, you're out buying groceries at Trader Joe's, and boom, you're high as a kite. I just got a chocolate-bar edible and plan to try it on a day I don't have to think or to go anywhere. Maybe I'll like it. You never know.

    Cannabis is good for spasms, there's no doubt about that. And it elevates your mood. I plan to try more ingestibles. Maybe I can find one that is shorter acting. And Melody, I will try your coconut oil/maple syrup/sweet potato mix. Maybe without the cannabis! Again, thanks to you both.

  • iamdadmaniamdadman Posts: 137Moderator Moderator
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    @Crucker
    I am in Southern California right now.  I live in Washington but I came down to see an acupuncturist.  I saw him for the first time today and it's too soon to tell but I have good feelings about easing my nerve pain.
    Yes, I normally save my marijuana usage for evening time when I have nothing to do and nowhere to go.  I will admit though, that sometimes, I will smoke a little then go play piano.  I dig it and it gets the creative juices flowing.

    take care,
    Joe
  • Melody_LacyMelody_Lacy Posts: 8Member
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    Years ago my cousin's oncologist told him, specifically, to smoke it.  He had cancer in his stomach and couldn't keep anything down.  Not even water.  His doctor said to smoke it first and then drink his liquid foods.  It worked.  He survived.  I smoke as part of my pain control plan.  My husband cannot smoke because his cerebral palsy makes it hard for him to purse his lips.  He loves the edibles I make for him.
  • DerrickDerrick Posts: 2Member
    First Comment
    What brand/flavor helps calm spasms down? I know it can effect people differently but I think itis a good start to try what has worked for others. Also, I need to find a strain to help me fall asleep.I have a hard time falling asleep wearing a cpap mask.I have tried various Indica brands 
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