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Autonomic dysreflexia

natalie33natalie33 Member Posts: 1
I need help with chronic dysreflexia that I have been experiencing for about a month. I checked everything and need help. I’m a C5-6 injured 15 years and this has never happened. I would love some advice because I’m not sure what to  do at this point. Been sweating non stop and have the chills. Thanks 🙏🏼 


  • AskNurseLindaAskNurseLinda Moderator, Information Specialist Posts: 112 Information Specialist
    25 Likes 10 Comments First Answer Name Dropper
    Hi, @Natalie33, AD is frightening when it happens, especially if you have not experienced it. A couple of things, first have you checked your blood pressure? That will be important information to tell your healthcare professional. Your blood pressure is probably lower than typical as this is what happens after SCI. If your blood pressure is above your normal (20-40 Hg higher than usual systolic, the top number), it can be critical to receive urgent or emergent medical care. An emergency treatment card is available here: https://s3.amazonaws.com/reeve-assets-production/AD-Guide-Adult-5-18.pdf
    Sit up and look for something that might be triggering the AD. You might find something bladder, bowel or skin wise, or if internal like an infection, you will not find it. If your blood pressure, sweating and chills does not resolve, call your healthcare professional or go to urgent care or call 911 depending on the severity of your issues. This should not wait. Some people have AD without the increase of blood pressure so you do need care. Take the card with you as it provides the references and directions for the medical care you need. It can be a good assistance for the care providers that you might meet for the first time.
    It could be that you have something other than AD. Although the symptoms are the same, they match other issues as well so best to be safe because something is going on in you body. If your AD symptoms do not resolve, you need emergency care or if they do, you need to know how to proceed so this is controlled in the future. Time to take action. Nurse LInda

    I'm online in this community every Wednesday from 8-9 PM ET to answer your SCI and paralysis related questions.

    Leave a comment any time below. Let's get the discussion going!

    Nurse Linda

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