Cerebral Spinal Fluid Leak (CSF) Love story — Reeve Connect
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Cerebral Spinal Fluid Leak (CSF) Love story

bpaddockbpaddock Member Posts: 1
edited November 19 in Love Stories
This is my first post here,  I hope I'm doing it correctly and in the correct place.
I was inspired to post after reading "Experiencing a Central Spinal Fluid Leak (CSF)" By guest blogger Zack Collie.  I did not see anyplace where I could reply directly to that blog entry?

So why am I posting in the Love Story section?

Because of the love for my late wife Karen whom took her own life due to the pain of CSF Leaks and being poisoned by Fluoroquinolone Antibiotics (Cirpo, Levaquin etc).

After her suicide, coming up on eight years now, I took all of her notes, emails and messages and turned them into what as become known as "Karen's Journal"; "Karen's Journal of CSF Leak Headaches and Chronic Pain: How Intracranial Hypotension and the Fluoroquinolone antibiotic Levaquin® (Levofloxacin) Killed Me".  I don't know the link policy here, just search for "Karen's Journal" and it will come up. It can be read for free on her site and any royalties from physical books go to the Spinal CSF Leak Foundation.

I've been told two things most often about Karen's Journal "It was too emotional, I could not finish it" or "I was in tears by the end".

Karen's saga with CSF Leaks has also become part of the documentary Pain Warriors.
It can be found on Amazon Prime, iTunes, Google Play and Viemo.  I get no remuneration from the documentary.  It is our goal to get it on Netflix to help spread the word about the abysmal treatment people are receiving today when they have Chronic Pain.

Karen documents day by day the pain from CSF Leaks and her experience navigating the Medical Establishment and my journey of love accompanying her.  Hopefully those new to the world of CSF Leaks will learn something from Karen.  The Medical Establishment has, as documented in Karen's Journal.

There is also the Spinal CSF Leak Foundation for those new to the condition.

Thank you.

PS: The proper term is Cerebral Spinal Fluid Leak, not Central.

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