What to do when he won’t follow Dr. recommendations? — Reeve Connect
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What to do when he won’t follow Dr. recommendations?

jeanie1
jeanie1 Member Posts: 7
First Comment
My husband was injured in September, Complete C 5-6-7.  He has been home from rehab 3 weeks and has developed significant pressure wounds on his Bottom.   Advice is to spend much of the day on his side in bed and his response is “ I’d rather be dead than spend my day in bed!”.    He is just so negative and uncooperative about everything he needs to do....I am exhausted by his negativity. 

Comments

  • AskNurseLinda
    AskNurseLinda Moderator, Information Specialist Posts: 170 Information Specialist
    100 Comments 25 Likes First Answer Name Dropper
    Hi, jenie, Your husband has been through quite a lot. Three weeks is not a long time for a huge life altering adjustment that occurred from SCI. It sounds as his wanting to be up against better judgement is something that he is just not willing to give up as so much of his perceived independence is gone. Often, this occurs as a way to hang onto the last bit of his preSCI life. 
    Still, the consequences of the pressure injuries will become worse. In the meantime, the situation has lasting effects on you, too.
    Be sure your husband has excellent pressure reducing seating equipment and that he is getting great wound care. Pressure releases will need to be done as well. But that is just the first steps to recovery. More medical attention will be needed. I am sure you have discussed this with your husband's healthcare team.
    If not already done, request a dietary consult to be able to create a diet with the needed nutrients and fluids to provide a chance of those wounds healing. A wound care specialist should be requested to provide treatment to the wounds. He may require a wound vac or further wound treatments.
    In the meantime, staying off the wounds are the way they will heal. Time to call in support by requesting a mental health consult. This will take the pressure off of you for being the one to remind/ask/carry the burden of him to stay off of the wounds. It will take some time but hopefully with the right treatments, he should become more aware of his own needs. The therapist can help with injury adjustment as well. Nurse Linda

    I'm online in this community every Wednesday from 8-9 PM ET to answer your SCI and paralysis related questions.

    Leave a comment any time below. Let's get the discussion going!

    Nurse Linda

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  • jeanie1
    jeanie1 Member Posts: 7
    First Comment
    I wish we would have received psych counseling in rehab.  Sharp rehab in San Diego was a disappointment.
  • AskNurseLinda
    AskNurseLinda Moderator, Information Specialist Posts: 170 Information Specialist
    100 Comments 25 Likes First Answer Name Dropper
    jeanie1, it is never too late to start. I hope he will be willing to do it. Therapy will be a big help. People typically adapt in 1-2 years but by then, these wounds will be way too much. This is a big adjustment but you both will make it. You will have to be stronger than you ever have before. This will help you, help him. You could do family counselling to coordinate your thoughts but I leave that to the therapist. Nurse Linda

    I'm online in this community every Wednesday from 8-9 PM ET to answer your SCI and paralysis related questions.

    Leave a comment any time below. Let's get the discussion going!

    Nurse Linda

    Register for my next webchat! Sign up here!