Spinal stroke — Reeve Connect
Reeve Connect will be shut down on October 31, 2021, while we reimagine and refresh our community forum. Thank you for making Reeve Connect a place where all people living with paralysis come to share their stories, tips, and engage in lively discussions. Stay connected with Reeve as we explore new community platforms and bring you an updated site that will be easier to navigate and accessible for all people living with paralysis. You can follow the Reeve Foundation on social media and sign up for our newsletter to receive the latest news on our initiatives and programs.

Read more

Spinal stroke

Lj71
Lj71 Member Posts: 2
Hi, I’d be grateful for any advice please. My 12 year old son suffered a spinal stroke in December at T3-T5, the specialist have never found the cause and just prescribed a daily dose of aspirin. His consultant mentioned that he may be prone to autonomic dysreflexia, which has me really stressed and looking for symptoms regularly. Is there any sort of test that would confirm if he is definitely at risk? Also, the incontinence specialist told us he would never be able to empty his bladder naturally because the sphincter muscle wasn’t connecting with his nerves, so he learned to self catheterise and one week later felt the need to urinate and has been doing this naturally for a few weeks, however, the specialist has told him to use the catheter after the first wee and last wee at night because there is a small amount left in the bladder. After just spending 5 days in hospital due to a severe UTI that must have been caused by the catheter, I’m thinking that it would be safer to stop using the catheter altogether, seeing that the PVR is usually around 5-10ml each time. Surely the risk of infection from that small residue is a lot less than from using a catheter? The specialists want to give him a profalaxic antibiotic to stop any further infections, but I’m a bit against more tablets than need be.