Bowel AD landed us in the ER...

WAGSofSCIWAGSofSCI Posts: 338Moderator Moderator
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AD due to bowel issues...

My partner and I recently spent a weekend at his parents. It was a very relaxing weekend until our bowel program, and he had a VERY hard time going to the bathroom. I tried everything from digital stimulation, olive oil, suppositories, warm lemon water, etc etc....the result: he suddenly had goosebumps, a massive and quick onset HEADACHE every time I did stimulation. We have never experienced anything like this in our lives.... 

We returned home and tried to regain some normalcy. The next few days, no sleep, unpredictable and quick onset migraines occurred repeatedly. After day 3, we HAD to go to the ER... the diagnosis...."mild bladder infection they assumed"...but, once we had the results back...it came out to be nothing. 

After talking to peers online and checking with a nurse in the rehabilitation clinic that Dan was hospitilized in for months, it was determined to be an "Autonomic Dysreflexia Hangover". Meaning excruciating headaches and no sleep can last for up to 2 weeks. 

IF anything we hope this information can be valuable to someone else. We are only 3 years post injury and this really scared and shook us to the core.

Elena
Your WAGS of SCI
(Elena and Brooke)

Comments

  • prc_donnalprc_donnal Posts: 9Member
    Name Dropper First Comment
    Hi, Elena!
    Thank you for your post.
    I am an Information Specialist at the Paralysis Resourcee Center.
    We have information available on AD, including a wallet card, as well as information on bowel management. 
    I would be happy to send these toyou. Please contact me at [email protected]; phone is (800) 53907309 x5911.

    Sincerdely,
    Donna
    Donna Lowich
    Senior Information Specialist
    Christopher & Dana Reeve Foundation

    Have a question about paralysis and need personalized assistance? Contact our Information Specialists: www.ChristopherReeve.org/Ask
  • ambercollieambercollie Posts: 85Moderator Moderator
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    Good info!
    Sorry you guys had to go through that though...will be very helpful if others experience similar things. Thanks again for sharing!
  • WAGSofSCIWAGSofSCI Posts: 338Moderator Moderator
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    @ambercollie

    Of course, it's all part of the process and we are all in this together. :)

    Elena
    Your WAGS of SCI
    (Elena and Brooke)
  • SterlionSterlion Posts: 84Moderator Moderator
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    Would you consider AD being normal when doing the bowel program or are there ways to prevent it?
  • jaarchjaarch Posts: 50Moderator Moderator
    25 Awesomes 25 Likes 10 Comments Name Dropper
    @Sterlion When I have had bowel AD issues, I have had good success with lidocaine gel. 
  • SterlionSterlion Posts: 84Moderator Moderator
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    @jaarch
    Do you use that with vaseline or by itself?
  • jaarchjaarch Posts: 50Moderator Moderator
    25 Awesomes 25 Likes 10 Comments Name Dropper
    @Sterlion Just by itself. It works as lube but I usually only use it once during the bowel care. Once the area is numb there is no need to use more. I just use regular lube after that.
  • SterlionSterlion Posts: 84Moderator Moderator
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    Ok, thanks!
  • dewandewan Posts: 4Member
    First Comment
    Nice! thank you so much! Thank you for sharing. Your blog posts are more informative. I think there are many people like and visit it regularly, including me.  The number of people going to U.S. emergency rooms for ... Symptoms include having fewer than three bowel movements a week, ... The increase in ER visits for constipation is greater than the 22 percent ... Video Ad by ... U.S. driver Jessi Combs killed in bid to break land-speed record.

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  • WAGSofSCIWAGSofSCI Posts: 338Moderator Moderator
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    @Sterlion 
    No, bowel AD is not typical for us when we do the program. This was a very, very unusual situation for us and honestly we still don't know what caused it. We have not had a situation like this since. Praise Jesus!

    -Elena
    Your WAGS of SCI
    (Elena and Brooke)
  • WAGSofSCIWAGSofSCI Posts: 338Moderator Moderator
    100 Likes 100 Comments 25 Awesomes First Answer
    @jaarch 
    @Sterlion 

    We use the "magic bullet" suppositories and lubrication. The combination of that with a green smoothie in the morning, and large salad the previous night are a win/win. :)
    Your WAGS of SCI
    (Elena and Brooke)
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