Bowel AD landed us in the ER...
WAGSofSCI
Posts: 356Moderator Moderator
AD due to bowel issues...
My partner and I recently spent a weekend at his parents. It was a very relaxing weekend until our bowel program, and he had a VERY hard time going to the bathroom. I tried everything from digital stimulation, olive oil, suppositories, warm lemon water, etc etc....the result: he suddenly had goosebumps, a massive and quick onset HEADACHE every time I did stimulation. We have never experienced anything like this in our lives....
We returned home and tried to regain some normalcy. The next few days, no sleep, unpredictable and quick onset migraines occurred repeatedly. After day 3, we HAD to go to the ER... the diagnosis...."mild bladder infection they assumed"...but, once we had the results back...it came out to be nothing.
After talking to peers online and checking with a nurse in the rehabilitation clinic that Dan was hospitilized in for months, it was determined to be an "Autonomic Dysreflexia Hangover". Meaning excruciating headaches and no sleep can last for up to 2 weeks.
IF anything we hope this information can be valuable to someone else. We are only 3 years post injury and this really scared and shook us to the core.
Elena
My partner and I recently spent a weekend at his parents. It was a very relaxing weekend until our bowel program, and he had a VERY hard time going to the bathroom. I tried everything from digital stimulation, olive oil, suppositories, warm lemon water, etc etc....the result: he suddenly had goosebumps, a massive and quick onset HEADACHE every time I did stimulation. We have never experienced anything like this in our lives....
We returned home and tried to regain some normalcy. The next few days, no sleep, unpredictable and quick onset migraines occurred repeatedly. After day 3, we HAD to go to the ER... the diagnosis...."mild bladder infection they assumed"...but, once we had the results back...it came out to be nothing.
After talking to peers online and checking with a nurse in the rehabilitation clinic that Dan was hospitilized in for months, it was determined to be an "Autonomic Dysreflexia Hangover". Meaning excruciating headaches and no sleep can last for up to 2 weeks.
IF anything we hope this information can be valuable to someone else. We are only 3 years post injury and this really scared and shook us to the core.
Elena
Your WAGS of SCI
(Elena and Brooke)
(Elena and Brooke)
Comments
Thank you for your post.
I am an Information Specialist at the Paralysis Resourcee Center.
We have information available on AD, including a wallet card, as well as information on bowel management.
I would be happy to send these toyou. Please contact me at [email protected]; phone is (800) 53907309 x5911.
Sincerdely,
Donna
Senior Information Specialist
Christopher & Dana Reeve Foundation
Have a question about paralysis and need personalized assistance? Contact our Information Specialists: www.ChristopherReeve.org/Ask
Sorry you guys had to go through that though...will be very helpful if others experience similar things. Thanks again for sharing!
Of course, it's all part of the process and we are all in this together.
Elena
(Elena and Brooke)
Do you use that with vaseline or by itself?
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No, bowel AD is not typical for us when we do the program. This was a very, very unusual situation for us and honestly we still don't know what caused it. We have not had a situation like this since. Praise Jesus!
-Elena
(Elena and Brooke)
@Sterlion
We use the "magic bullet" suppositories and lubrication. The combination of that with a green smoothie in the morning, and large salad the previous night are a win/win.
(Elena and Brooke)