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Spinal Cord Injury & Burnout (for the injured individual)

WAGSofSCIWAGSofSCI Moderator Posts: 384 Moderator
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Hello everyone,

Hope this weekend finds you well. With the change of season and change of temperatures preparing for the transition on our minds and bodies can feel exciting and a little chaotic. Changing wardrobes, preparing for body temperature changes, new routines, perhaps some of have returned back to school or work etc. I came across this awesome article posted on Backbone.com and I thought it was a really good read, even so that I shared it on my public forums and with all my able bodies friends and family. Check it out! 

WEB:

https://backbonesonline.com/sci-burnout/?fbclid=IwAR02cg6BeilRAM-DlCDLgrSyLfn6vF0PmsOqa_GubL4pB1EFlo9BQTtI_Ac


Leave a comment below if you agree or disagree with the article.

Thanks for reading,

Elena
WAGs of SCI 
Your WAGS of SCI
(Elena and Brooke)

Comments

  • WAGSofSCIWAGSofSCI Moderator Posts: 384 Moderator
    100 Awesomes 100 Likes 100 Comments First Anniversary

    Your WAGS of SCI
    (Elena and Brooke)
  • JHPRCJHPRC Moderator, Information Specialist Posts: 38 Information Specialist
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    Burnout is def a scary thing, I had no idea that WHO now considered it a disease but it def makes sense being how much burnout  and stress can effect your body and health. The article also gave some great tips to better manage stress which I found helpful. 
  • BrittanyFrankBrittanyFrank Moderator Posts: 65 Moderator
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    I so needed this article and reminder. I've definitely been feeling that burnout of dealing with SCI because it really is a full-time 30 hours a week job. The other point they made was that most people can escape their jobs and go on vacation for a week. But for SCI there is no break or vacation. My question with this is how individuals manage full-time jobs while taking care of their body and all that comes along with a SCI?
  • BrookeUBrookeU Moderator Posts: 176 Moderator
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    I appreciate this article! Especially the line that mentions there is no vacation from injury. At the end of a long day of work/errands, I have the luxury of throwing on my pajamas and going to bed, but my brother has to go through a whole routine. I've felt guilty about this before, that we could be equally exhausted, but he doesn't get to just go to sleep immediately. The same goes for him having to get up earlier in the morning to start his day. Thanks for sharing!
  • ZcollieZcollie Moderator Posts: 238 Moderator
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    I really enjoyed reading this article. A lot of what was said is really true and some of the things I had never thought about before. The hardest thing for me, and it does burn me out. I constantly relying on others for help and asking for something when I need whatever it may be. Especially the simple things like getting a glass of water, making a snack, getting my tooth brush ready on my own, doing my hair, etc... It put a lot on my partner and affects our relationship.. 
    Accept what is, let go of what was, and have faith in what will be. -SONIA RICOTTI
  • WAGSofSCIWAGSofSCI Moderator Posts: 384 Moderator
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    @JHPRC Totally! It makes sense that if we are always go, go, go that our fuel tanks can become very empty. Living with SCI, doesn't really give you any time to chill because daily tasks take extra effort and energy. What were some of your favorite tips particularly? :)
    Your WAGS of SCI
    (Elena and Brooke)
  • WAGSofSCIWAGSofSCI Moderator Posts: 384 Moderator
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    @BrittanyFrank
    Very good point! Life with SCI doesn't take a holiday. This is something I notice the most when my partner and I actually go away on holidays. It  makes me realize that new experiences and building that we enter aren't necessary set up for a wheelchair user. Having to think on the spot of how to maneuver around and make things work for those in chairs keeps our brains sharp, lol. So, how do we relax and avoid burnout while taking a break or vacationing? I guess just taking some quiet time and be easy on ourselves and our bodies. What do you do? :)
    Your WAGS of SCI
    (Elena and Brooke)
  • WAGSofSCIWAGSofSCI Moderator Posts: 384 Moderator
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    @BrookeU
    I completely agree with you, especially about the early mornings and not being able fall asleep right away. Guilt management is HUGE! We are human and if we didn't feel a sense of guilt that would be odd. I think it comes from a place of caring so deeply and trying to sympathize with the one we love who are in chairs. This is where I have a hard with "over assisting" with my boyfriend. I want to help him transfer or get into bed because I know I can help him do it faster but I also don't want to upset him by making him feel that he's not doing a good enough job. It is such a tough place to be in.
    Your WAGS of SCI
    (Elena and Brooke)
  • WAGSofSCIWAGSofSCI Moderator Posts: 384 Moderator
    100 Awesomes 100 Likes 100 Comments First Anniversary
    @Zcollie
    I think most couples struggle with balancing this. I noticed it a lot this weekend while we spent much needed family time for Thanksgiving. It's hard to not feel bad about our partners needing help especially when you physically cannot do something on your own and its hard on our partners because they feel like they rely on others. I don't think these feelings will ever diminish from our relationships or daily lives but we have to come to terms with knowing that this is the only way and we choose to live our lives with our partners the way it is. Over time, we may find better systems that work for both parties but ditching the guilty feeling as quickly as possible and just doing what needs to be done is the best way for us to carry on. For example, this morning we had to do our morning routine at Dan's parents house in a very tiny bathroom, yes it can be frustrating to having to work as a team to transfer and squeeze both of our bodies in a tiny bathroom and work as a team but I also realized that if we just get it done as quickly as possible that the rest of our day can go on. A lot of these battles are internal and mental. We are the only ones who can control our thoughts and make adjustments to these patterns of thinking. This is life and we are all just doing the very best we can. :)
    Your WAGS of SCI
    (Elena and Brooke)
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