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Finding help

Mnichols23Mnichols23 Moderator Posts: 43 Moderator
10 Comments First Anniversary 5 Awesomes First Answer
 I am currently a 23-year-old C-5 quadriplegic and college student. I’m blessed that my insurance covers enough hours for me to have a night and morning nurses. Unfortunately, I’m unable to drive myself so my family members (usually my dad) or friends have to drive me everywhere whether it be school, doctors appointments, or even leisurely activities. It’s been very hard for me to find help during the day hours. I don’t need a nurse but I do need someone capable of driving, adjusting, and emptying my bag. I guess an aide. My question for everyone is how do you find help and where do you go to find it?


  • JHPRCJHPRC Moderator, Information Specialist Posts: 38 Information Specialist
    10 Comments First Anniversary 5 Awesomes 5 Likes
    Hi and thanks for your post I hope you get some additional feedback from the community. I wanted to provide the link to our caregiving document which does provide resources related to PCA's. There are also websites like care.com that may be a good resources as well.


  • Monica.TMonica.T Member Posts: 105 ✭✭
    25 Likes 10 Comments 5 Awesomes Photogenic

    We live in a rural area, there are no programs of any kind in our area for disabled young adults, and Charlie is 19 so he falls into the insurance coverage "gap" ... to old for child age services and programs but still to young for adult programs and services; so we are on our own without any help, programs or services for in-home nurses or aides. Insurance's solution to our problem was to suggest I "place" him, which means put him in a nursing home.

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