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Things u MUST know after a SCI but were never told???
Hi all, I was wanting to know if you had comments on things you should have learned early on after an injury but were never told only to find out years later. I run into this a lot. I find out things now that I wish I had been taught just after my injury. It would have made things a whole lot easier. Tips, tricks, products, self management, healthcare, etc.
Thank you!!!
Thank you!!!
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Comments
Great Question!
I didn’t understand the importance of keeping good bone density so exercise and standing frame are very important. Keeping Blatter healthy to cut down on UTI’s Lots of Water and Cranberry Pills. These are Long term things so early on I wasn’t thinking about these or the future issues that could arise. Also, fundraise in the beginning when injury is new even if hard because that’s when you have most of your support. Use the money wisely and save for future needs. Those are the things that come to mind at the moment.
we know others who get them constantly! I can’t promise the cranberry is the thing that has kept him from them but he hasn’t had one in a decade!
Are you doing stretches in bed? Can your husband get out of bed and into a wheelchair?
Hes just having some physio since tge last 2 weeks. He is also transferring with aid of a walking aid And care assistants -2
spends 11:30 to 7:30 / 8pm in his chair
he really doesn’t want to go back to bed mid afternoon as care home suggest
waiting for dov to look at photos of swelling as no visits due to covid
I am an Information Specialist at the Foundation's Paralysis Resource Center. We have a list of resources in the U.K. We also have info on physiatrists (rehab doctors)> There's a link to the website where you can get a list of physiatrists in the UK.
Please email me and I will send this information to you.
My email address is [email protected]
I look forward to hearing from you.
Sincerely,
Donna
Senior Information Specialist
Christopher & Dana Reeve Foundation
Have a question about paralysis and need personalized assistance? Contact our Information Specialists: www.ChristopherReeve.org/Ask
Any update??
the ‘bruise’ is no worse and he has agreed to return to bed late afternoon for a spell.
i am very concerned about his mental health
tighter Ovid restrictions mean I can only visit when the weather allows outdoor visits.