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AskNurseLinda Information Specialist

About

Username
AskNurseLinda
Joined
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Visits
147
Last Active
Roles
Moderator, Information Specialist
Points
102
Posts
108
Badges
9
Type of paralysis
Other
What is your primary relationship to paralysis?
Caregiver family or friend
Has the person with paralysis ever served or are they currently serving in the Armed Forces (U.S. military)?
No

Activity

  • AskNurseLinda
    AskNurseLinda earned the First Answer badge.
    Answering questions is a great way to show your support for a community!
    August 13
  • Koli1962
    Hi Nurse Linda,
    I had an incomplete, C5-C6 spine injury, in 1983. I did experience temporary paralysis post second surgery. I recovered mostly.  Over the decades I have added various symptoms. Many of these symptoms I thought to be unrelated to my injury. I have been told by several of my doctors that some symptoms are related to my CNS/spine injury. I have tonic pupil, bladder incontinence, congestion, hyperhidrosis, and a dozen other dysfunctions. Over the past several years, I have been evaluated by many specialists respective to any number of symptoms. All diagnostic test were negative. I now experience hypertensive episodes and an onset of several other symptoms. They have put me in overdrive to seek answers. I have been DESPERATELY trying to find a physician that can evaluate me for autonomic dysreflexia. My bevy of doctors feel unqualified to make an AD determination. I was referred to Duke Medical. I was informed the experts are there. Nope, that was unsuccessful too. Now, I have been referred to Vanderbilt's Dysautonomic Clinic. Potential appointment, 1 year! I live in North Carolina and require a diagnosis for proper treatment. Is there a list of providers that evaluate for AD? I really appreciate any assistance. 
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    August 5