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AskNurseLinda Information Specialist

About

Username: AskNurseLinda
Joined: -
Visits: 147
Last Active: September 24
Roles: Moderator, Information Specialist
Points: 102
Posts: 108
Badges: 9
Type of paralysis: Other
What is your primary relationship to paralysis?: Caregiver family or friend
Has the person with paralysis ever served or are they currently serving in the Armed Forces (U.S. military)?: No

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August 13
Koli1962 → AskNurseLinda

Hi Nurse Linda,
I had an incomplete, C5-C6 spine injury, in 1983. I did experience temporary paralysis post second surgery. I recovered mostly. Over the decades I have added various symptoms. Many of these symptoms I thought to be unrelated to my injury. I have been told by several of my doctors that some symptoms are related to my CNS/spine injury. I have tonic pupil, bladder incontinence, congestion, hyperhidrosis, and a dozen other dysfunctions. Over the past several years, I have been evaluated by many specialists respective to any number of symptoms. All diagnostic test were negative. I now experience hypertensive episodes and an onset of several other symptoms. They have put me in overdrive to seek answers. I have been DESPERATELY trying to find a physician that can evaluate me for autonomic dysreflexia. My bevy of doctors feel unqualified to make an AD determination. I was referred to Duke Medical. I was informed the experts are there. Nope, that was unsuccessful too. Now, I have been referred to Vanderbilt's Dysautonomic Clinic. Potential appointment, 1 year! I live in North Carolina and require a diagnosis for proper treatment. Is there a list of providers that evaluate for AD? I really appreciate any assistance.

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August 5